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This action has now closed.

You can still take part in one of our other campaigns. So why not add your name to our petition calling on the UK’s Health Ministers to step in and take responsibility for people with Lynch syndrome?


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Lynch syndrome is a genetic condition that can increase the risk of bowel cancer to up to 80%. As it’s an inherited condition, there’s a 50:50 chance family members could be affected too.

An estimated 175,000 people in the UK have Lynch syndrome, but hardly any of them know they have it because families aren’t being tested for the condition.

That’s why we need your help to raise the alarm.

Sign the petition  >

Caroline’s Story
“Three generations of my family were devastated by cancer because of Lynch syndrome – my grandma, my mum, auntie and two uncles. I was also diagnosed with bowel cancer.

Because of my family history I should’ve been tested for Lynch syndrome sooner and my bowel cancer might have been prevented.

The silver lining is that now I know about the condition, I have a better chance of making sure my children don’t have to go through what I went through.”